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RPACE - Glossary and FAQs


Frequently Asked Questions

‎All health care providers, regardless of care setting can start integrating a palliative approach to care into their routine care. This does not require a separate referral but simply involves the clinician initiating a conversation about what matters to the patient and about their wishes for care. This website contains several conversation frameworks designed to support this conversation.

Yes, every discipline can identify indicators of health change and have a Serious Illness Conversation as taught in the education.

*Framing of concerns/prognosis should be expressed within a clinician's scope of practice.

Many health care providers understand goals of care conversations to be about an individual's wishes around specific medical decisions and interventions (e.g. preference for location of care, Cardiopulmonary Resuscitation, medications for relief of suffering). The Serious Illness Conversation Guide is a validated tool and guiding framework to assist clinicians in having more comprehensive goals of care conversations. 

The Serious Illness Conversation explores what matters most to patients and allows clinicians to learn more about a patients' goals and values so that recommendations for care can be made based on what matters to the patient. (E.g. I've heard you say that you are worried about experiencing a lot of pain at the end of life. Keeping that in mind and with what we know about your illness, I recommend that we discuss options for pain management, including medication and non-medication supports).

Glossary

Advance Care Planning is planning as early as possible for any individual, healthy or not. It is stating one’s wishes and preferences for future care in the event of an acute medical crisis or sudden health deterioration. An advance care plan may be used to guide the substitute decision maker and the healthcare team when contemplating what an individual would want or not want if they were unable to speak for themselves. ‎

 

Goals of care discussions are related to specific medical decisions made in the context of disease progression, crisis, poor prognosis or health deterioration and should describe an individual’s goals for treatment of the disease and/or symptoms. These conversations support the direction of care ensuring care aligns with client’s wishes.‎

 

Illness is defined as an absence of wellness due to disease, other conditions, or aging. It includes acute, chronic, advanced, life-limiting or life-threatening illnesses. An acute illness is one that is recent in onset and likely to be time-limited. If severe, it could be life threatening. A chronic illness is likely to persist for months to years. If it progresses, it may become life threatening. An advanced illness is likely to be progressive and life threatening. A life-limiting illness is one that affects health and quality of life, and can lead to death in the near future. A life-threatening illness is one that is likely to cause death in the immediate future. ‎‎

 

Framing our concerns about where this illness is likely to lead at some point in the near or more distant future. This can be done by "planting seeds" about what to expect as a person's disease progresses to assist individuals in making the most informed decisions possible.‎

 

A Palliative approach to care is focused on the relief of suffering, including psychosocial and spiritual aspects of care important to the individual/family. It does not link the provision of care with prognosis, but instead focuses on conversations with people about their needs, values and wishes. Based on the person’s wishes, the palliative care philosophy is applicable at any time of the illness journey, in conjunction with other therapies intended to prolong life. This includes investigations needed to better understand and manage distressing clinical complications. It neither hastens nor postpones death but sets out to preserve the best possible quality of life to support a natural death. ‎

 

The Serious Illness Conversation Guide is a conversation framework that supports planning when there is progression of a serious illness. This conversation focuses on an individual's values, beliefs, goals, and wishes. Based on the principles of personhood and dignity, the conversation is focused on learning about the individual and what is most important to them. This guide was created by a team of palliative care experts at Ariadne Labs in Boston, MA.‎

 

A substitute decision maker (SDM) makes health care decisions for a patient when the patient is incapable of making these decisions on their own.  A patient can appoint a SDM in advance of a severe illness or injury and may need to complete a Representation Agreement in order to legally do so. In BC, if no one has been legally appointed to make health care decisions, a temporary SDM is usually chosen according to a defined order set out by the Ministry of Health.​​‎

 
 


SOURCE: RPACE - Glossary and FAQs ( )
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