Resource
RPACE - resources
A list of all RPACE Resources in one place.
Resources
-
-
Surprise question
-
SPICT
-
Clinical Frailty Scale
-
Identification worksheet
Reviewing your caseload for clients who would benefit from a Serious Illness Conversation.
-
Screening for Serious Illness Conversations
One-page document for screening a single patient, client, or resident.
-
Dementia roadmap for clinicians
A guide for clinicians to identify where someone with dementia is in their stage of disease progression and what to expect in the future.
-
Dementia roadmap for families
A guide for families on what to expect as dementia progresses over time.
-
-
-
Clinician reference guide for the Serious Illness Conversation guide
A guide that provides strategies for managing strong emotions, sharing prognosis, or navigating other difficult situations that may arise.
-
What Matters Most to Me Worksheet
Allows individuals to consider their values and beliefs before having a Serious Illness Conversation. Translations are available.
-
Family communication guide
Provides support to patients who will be having conversations about what matters to them with their loved ones.
-
-
-
iPace conversation starters
-
Preparing for a Serious Illness Conversation - A guide for health care providers
-
Physician education resources
-
-
How to talk to end-of-life care with a dying patient
A 3-minute talk by Dr. Atul Gawande on what end-of-life conversations are really about.
-
Documenting serious illness goals of care conversations
A 5-minute video developed by PHC on how to document GOC on the Cerner PowerForm.
-
Serious illness conversations in acute medicine and surgery
A 26-minute talk by Dr. MacRedmond (ICU), Dr. Hatala (Palliative Care/IM) of PHC, and Wallace Robinson (Leader, Advance Care Planning).
-
Cultural considerations
-
MOST vs GOC
-
Dr. Sunita Puri on the Importance of Language in Medicine: Speaking from the Heart
-
-
-
Serious illness conversation guide
A 7-step guide for facilitating serious illness conversations
-
4-question framework
A 4-question guide for GOC discussions
-
What Matters Most To Me
A 2-page worksheet, based on the Serious Illness Conversation Guide, for patients and support people to work through what is most important.
-
-
-
Palliative performance scale
A framework for measuring the progressive decline in patients.
-
GO-FAR tool
A tool to identify patients at high risk for poor outcome.
-
GO-FAR tool article
-
ECOG performance status
Standard criteria for measuring performance status in patients with cancer.
-
External links
Ariadne Labs: The creators of the Serious Illness Care Program
- Ariadne Labs website - There are many additional resources available to support the Serious Illness Conversation Guide
Advance Care Planning
Demonstrations of the Serious Illness Conversation Guide
VCH MOST: Medical Orders for Scope of Treatment
- Visit the MOST webpage
CPR Decision Aid Tool
- Visit the Advance care planning website
Palliative Approach to Care Videos
- iPANEL: Shift your care to a Palliative Approach
- BMJ: Palliative Care from Diagnosis to Death
- Dr. Steven Pantilat (palliative care physician): Life after the diagnosis—Expert advice on living well with a serious illness
- Dr. Zara Cooper (emergency surgeon) How doctors tell patients they’re dying: Being Mortal
- Pallium: Palliative Care early is better than palliative care late
- Palliative Care: You are a Bridge (the concept that Palliative Care can be an added support alongside treatment)
- Palliative Care PSA: We are the fire department, we are not the fire
- Benefits of an Early Palliative Approach
- Before I die: A day with terminally ill patients with Dr. Sunita Puri (from Death Land documentary series)
Stories from Patients: What Matters to Me
- Mike's Story and John's Story Watch the video.
- Ted Talk - What Matters to Me: A New Vital Sign. Watch the video.
Research articles that demonstrate the benefits of an Early Palliative Approach and/or Early Conversations
- The impact of advance care planning on end of life care in elderly patients: a randomized controlled trial
- Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment
- What really matters in end-of-life discussions? Perspectives of patients in hospital with serious illness and their families
- Communication about Serious Illness Care Goals: A Review and Synthesis of Best Practices